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DMD Fund versus China Dolls Center for Rare Disorders

These two grassroots NGOs can help others in their charity endeavors by shedding light on the challenges and solutions faced by such organizations.

The recent Ice Bucket Challenge has drawn attention to the plight of sufferers of rare diseases in the West and the NGOs that seek to mitigate their symptoms and search for cures. As early as 2011, the China-Dolls Center for Rare Disorders, founded by individuals with Osteogenesis Imperfecta (OI), registered under the Beijing Civil Affairs Bureau as a non-profit organization. The Duchenne muscular dystrophy (DMD) Fund started in a similar way, and both have spent four years establishing themselves by registering, operating, fundraising and building effective teams. These two grassroots NGOs can help others in their charity endeavors by shedding light on the challenges and solutions faced by such organizations.

Case advisor: 
Zhu Rui
Case writer: 
Cui Huanping
Keywords: 
non-profit sector, fundraising